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Saturday, June 21, 2025

stay hydrated

I had an MRI in Chapel Hill early Friday morning before my radiation treatment in Durham. All I had to eat or drink before leaving the house was a small cup of coffee. Big mistake. This made the process of the MRI difficult because 1. I was dehydrated so it was difficult to find an easy vein to use for the injection and 2. I was much more nervous, which made all the needles painful. I blame myself for that. 
I start the second tier o radiation this week, which is a higher dose in a more focussed area, while I am lying on my back. The first week week of radiation was delivered while I was on my belly, with a section of the table removed. This is an effort to avoid tissue damage near my lung before my thoracic surgery in two weeks. 
New set up for radiation 
Original set up for radiation treatment 

Tuesday, June 03, 2025

so... I have lung cancer

The pulmonologist phoned to tell me the news. She only diagnoses the cancer. I still need a Thoracic team and surgeon. I need a brain MRI to find out if it has spread there, which is a common direction for lung cancer. She does not know if it is treatable. She said she will reach out to my radiologist and chemo oncologist. She said she would try to put them in touch with a Thorasic team. My new 3D CT scan is tomorrow at 12:30 pm but my Radiologist wants me to phone her mobile number before I head out tomorrow for my appointment. They think my treatment can go through without affecting any lung surgery or treatment. My Radiologist has already started reaching out to the Thoracic team on my behalf. My radiation treatments take place June 12 - June 26. I will have to drive myself to the treatments, which is fine - it’s just a long commute at 75 to 90 minutes. I am told a lot of people drive themselves to radiation treatments - I just hate to do it alone when my mind is in a bad place. MonsterMustDie doesn’t want me to stay at the Duke Cancer house during my daily radiation treatments but he will not take any time off work so he can only help me when they can schedule my treatments late in the day. He works weekdays 8:00 AM - 12:00 PM and he will only available if appointments and procedures are after 2:00 pm. I really need more people caring for me and driving me when I can't do it myself. I think I still need to look into staying at the Cancer House in Durham during my radiation treatments despite his objections. That would at least cover that part of my tests and treatments if I stay there. I don’t know who I can get to help here while I am going through all this. Karen and Bob will help all they can but they have a life to maintain too and a trip to Charleston they’ve been planning for over a year on June 20-26, in the middle of my radiation treatments.

note to self

Maybe my left lung will hurt a bit tomorrow. It's a bit hurty at the moment because I started coughing after, quite typically, some coffee going down the wrong way. It's very common for me to be doing nothing and syliva going down the wrong way and making me cough but it is an especially unwelcome event this week afte my lung biopsy last Friday. So far, I've been very fortunate to not have to cough or clear my throat excessively while everything is healing from the procedure. This habit of things going down the wrong way is apparently, according to Jennifer, something I inherited from our biological mother, Gwen.