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Tuesday, May 03, 2016
Stress
I expect a good general media black-out of a week to improve my overall view of humanity as well. The world is so much better first-hand than it is at a distance. My ever-changing work schedule is causing me a great deal of anxiety this week as well. Social anxiety is hitting me more than usual as well when I have to speak with other humans in formal conversations over the phone. There are job interviews I want to try to get into but my schedule makes it nearly impossible with this dance I am trying so hard to do to stay active and employed at low-paying gigs that do not pay enough to support anyone. It's pocket change for my car and phone and nothing more.
I need new underwear. I need new glasses.
On top of that, I got news yesterday that my condo in Atlanta is now infested with what is probably bed-bugs that came in luggage from a business trip. I have my people (real estate agent & manager) on it. They've tried two exterminator visits from Orkin without success and now are trying diatomaceous earth.
Tuesday, February 09, 2016
Anniversaries
Sunday, February 07, 2016
My Mother Is Gone
Once again, everything in my life has stopped and must be rebooted all over again. But that's life, isn't it?
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| Helen Loretta Crowe Perry during our last time together in October 2015 |
Here's some food for thought from other people:
from my good friend Jae Paul Harrison
A few weeks ago, I had dinner with some friends. The conversation flowed through many subjects — some hilarious, many frivolous, but also some substantive and, though discussed with a certain dark wit, markedly sad. All of us at the table had lost a parent, a couple of us just within the past year or so, and I mused at one point that I know (actually KNOW, not just am acquainted with) a full dozen people who had a parent die in 2015.
I know this is the circle of life (or whatever sugarcoated Disney metaphor one prefers), but I can say now with an authority conferred by personal experience, anectodal evidence, and overwhelming proof than no one is every really ready to be orphaned, even if only partially.
Today, a dear friend's mother passed away, making my friend the 16th person I know to lose a parent since I lost my dad last January. Yes, since that dinner just a few weeks ago, 4 more of my friends have been left to make arrangements and find inner reserves of grace they didn't know they had to weather the kind support and helplessness their friends display at these awful moments of grief. We all stand by, hoping that there is something that we can offer, knowing that there really isn't. Comfort comes only with time, and it takes a lot more of that than you might expect if you haven't been through it.
A friend of mine who lost his father shockingly and unexpectedly when my friend was not yet 30 years old told me that he always checks back with the bereaved after 6 months or so because "by then, everyone else has forgotten and moved on, but that's when it really hits you that you never get to have a conversation with your dad ever again, and that's when you feel most alone." In a book by Christopher Buckley, I read, "You don't remember who shows up, but you definitely remember who doesn't."
I don't know where I'm going with this except that my friend lost her mother today. I want better words than "I'm sorry for your loss." I want something more tangible to offer than yet another question for my friend to answer when I ask, as everyone she knows will ask, "Is there anything I can do for you?" I want somehow to ease what cannot be eased and to shine light I do not have into a darkness that I haven't found my way out of even yet.
But all I have is this concern, this compassion, this empathy, and this wish that we didn't have this thing in common.
For all of you who have walked this year with me, carrying your own sorrow for your own losses, you were in my prayers at your freshest loss, and you are still in my prayers.
Always Go To The Funeral
by DEIRDRE SULLIVAN
August 08, 2005
I believe in always going to the funeral. My father taught me that.
The first time he said it directly to me, I was 16 and trying to get out of going to calling hours for Miss Emerson, my old fifth grade math teacher. I did not want to go. My father was unequivocal. "Dee," he said, “you’re going. Always go to the funeral. Do it for the family.”
So my dad waited outside while I went in. It was worse than I thought it would be: I was the only kid there. When the condolence line deposited me in front of Miss Emerson's shell-shocked parents, I stammered out, "Sorry about all this," and stalked away. But, for that deeply weird expression of sympathy delivered 20 years ago, Miss Emerson's mother still remembers my name and always says hello with tearing eyes.
That was the first time I went un-chaperoned, but my parents had been taking us kids to funerals and calling hours as a matter of course for years. By the time I was 16, I had been to five or six funerals. I remember two things from the funeral circuit: bottomless dishes of free mints and my father saying on the ride home, "You can't come in without going out, kids. Always go to the funeral."
Sounds simple — when someone dies, get in your car and go to calling hours or the funeral. That, I can do. But I think a personal philosophy of going to funerals means more than that.
"Always go to the funeral" means that I have to do the right thing when I really, really don't feel like it. I have to remind myself of it when I could make some small gesture, but I don't really have to and I definitely don't want to. I'm talking about those things that represent only inconvenience to me, but the world to the other guy. You know, the painfully under-attended birthday party. The hospital visit during happy hour. The Shiva call for one of my ex's uncles. In my humdrum life, the daily battle hasn't been good versus evil. It's hardly so epic. Most days, my real battle is doing good versus doing nothing.
In going to funerals, I've come to believe that while I wait to make a grand heroic gesture, I should just stick to the small inconveniences that let me share in life's inevitable, occasional calamity.
On a cold April night three years ago, my father died a quiet death from cancer. His funeral was on a Wednesday, middle of the workweek. I had been numb for days when, for some reason, during the funeral, I turned and looked back at the folks in the church. The memory of it still takes my breath away. The most human, powerful and humbling thing I've ever seen was a church at 3:00 on a Wednesday full of inconvenienced people who believe in going to the funeral.
Tuesday, February 02, 2016
Mother
Friday, January 29, 2016
Her final decision
I emailed work to explain that I would not be in today and why, briefly. Got an affirmative response from my manager, who said he completely understood.
I am packing as much as I might need to wear. MonsterMustDie started complaining about me bringing too many things and not wanting to bring clothes for a funeral. I told him the future is uncertain and that, if he didn't want my stuff filling up his car on the drive down to my mother's house, I would just make the trip alone. Looks like he's relented and will be coming down with me and my clothes today. I can leave everything I bring at my mother's house, spread out on her bed if we leave on Sunday morning. At least, if I don't need it immediately for an unplanned long stay there, I'll be more prepared. This is no longer a plan to make a fast visit in one day, like he wanted to do originally.
Wednesday, January 27, 2016
Mother
Sunday, January 24, 2016
signal is silent
My sister-in-law has taken the two dogs to a West Highland Terrier rescue group. My uncle is still not 100% back to normal health and now has unexplained fainting spells. I tried phoning my mother today but was only able to leave voicemails. My sister-in-law has told me the cell phone reception is very bad there and she does not have a landline phone in her room. I'll keep trying but I don't expect to get through.
It's almost a relief not to talk to her, to be honest, rather than hear her sobbing for the entire call. She just talks about how bad her doctors and nurses are and how nobody cares about her, including myself. I can't shake off the sorrow I feel every time I try to talk to her. My sister-in-law says a glass or two of merlot immediately afterwards helps.
Tuesday, January 12, 2016
Time
Last week, out of the blue, I went on two interviews that led to me being hired part part time at a local home decor retailer. My first day of training for the retail job starts tomorrow morning at 8:00 AM. They did not tell me how long the day would be. I assume I will be out by 5PM or earlier but that is unknown. I also don't know how many hours a week I get to start at.
I am hoping I can easily juggle both things for as long as all the classes I paid for last. I am also hoping the job goes well and that I might soon be brought on board full time. The future is uncertain but hopeful. As usual, I am extremely anxious about both. I want to do well at the job. It's the first retail place I've worked in many years and my self esteem in that area, or any new place, is low these days after not working for so long. None of my old activities before I left to care for my mother have returned so I am still trying to start over again.
Speaking of my mother, she is still in the hospital. Whenever I phone, all she does is cry. She says she is in constant pain that nothing can help. She worries about her two dogs and wants to be home with them. She says everyone has abandoned her. No one can physically visit her because she is in isolation again with contagious infections at the same hospital that made her sick to begin with so there is really nothing I can do for her other than call her on the phone often. It's really hard to take. She won't take her meds anymore and her mood swings go from constant crying to being angry at everyone who is trying to take care of her which, of course, makes it difficult for anyone to want to be around her for love or money.
Friday, January 08, 2016
Frozen
I hadn't heard from my mother since New Years Eve, when she sent me a text asking that I NOT phone her at midnight (a tradition in my family) because she planned to be asleep. I phoned a few days afterwards with no answer to my calls or voice mails. Wednesday, I finally spoke to her. She is once again in the hospital, on the 5th floor.
I wondered why my uncle or sister-in-law did not let me know she was back in the hospital or what was up. As it turns out, my uncle Ron is recovering from surgery and is incapacitated at the moment, having his own things to worry about. He recently had one knee replaced (the other knee needs to be done also) and this week, he's had surgery on his arm.
My sister-in-law is busy as well with a sick mother and husband. My brother is bedridden with double pneumonia and her mother is in the same hospital now, on the 4th floor with both pneumonia and a viral infection which was described as “like tuberculosis but not tuberculosis”. When I phoned my sister-in-law, she was busy cleaning her parents house - kitchen, floors, bathrooms, laundry, linens - in preparation for her mother being released from the hospital in a couple of days.
Oh, and my next door neighbor is still recovering from a health-crash over the holidays that resulted in pneumonia that set off multiple autoimmune disorders. Her doctors don't seem to know where to start with her because one cure sets off another problem so she is dealing with an avalanche of illnesses now. All caused by her own stressed-out body.
Meanwhile, all of our household is healthy. We are counting our blessings, knocking on wood, and crossing our fingers for a well winter.
Monday, October 26, 2015
The crazy continues
The undoing
Saturday, October 24, 2015
Early Saturday
Thursday, October 22, 2015
Wednesday
Time for a rant.
I spent most of the day at the dining table, surfing Facebook repeatedly while Mother watched the news, game shows and daily TV like The Chew. Her first appointment with the occupational therapist canceled on her because the therapist has a child in the hospital. The second appointment of the day phoned to reset the time a bit later in the day. Most of the day was spent waiting on different things. After Mother's therapy, we went out for pedicures. Then we had dinner before going home.
Over dinner, she brought up the inevitable subject of extending my stay with her. She said it was supposed to rain later in the week and it would be too dangerous for me to go home in bad weather. She said there's no one to take care of her after I go home. I reminded her that I already have plans to resume my life after the 27th and that the rest of the family would be back by then. I also mentioned that uncle Ron was on the mend and already driving again.
We went back to the house and fed the dogs, I phoned MonsterMustDie while I walked them. When I got back inside she was on the phone with Ron. She turns to me after the phone saying Ron told her I "posted" that I was leaving. I told her I only emailed the family yesterday to remind them when I needed to go home - on October 27 (and what she needs so they can plan accordingly ). My uncle seems to think I should stay with my mother indefinitely (permanently).
Apparently my life means nothing to anyone but me.
Tuesday, October 20, 2015
Poop
Monday, October 19, 2015
Dogs
Wednesday, October 14, 2015
Tyranny of the Calender
Monday, October 05, 2015
post weekend
Mother seems to be doing much better physically. She got two units of blood on Thursday and another two units on Friday. She also had her dialysis treatments in the hospital without any worries about transportation. By Sunday, her doctor had given her a lighter sling to keep her arm in rather than the tight, stiff one that held her arm so close to her body. She wants to go home. She is terrified of going back to the rehab center. She does not want to be in the hospital. She is having evening anxiety attacks every day now, which sounds like something I've heard described as "sundowning" in the past. She feels abandoned and under informed by her doctors.
All this, and my brother and sister-in-law have not yet told her about their trip to Italy. I told them she needs to know before they leave on the trip because I do not want to be the one who breaks the news to her and she needs to know that I'm planning to take care of her while they're out of the country. I got a voice mail from my uncle Ron while I was in the shower this morning. He sounded tired and concerned. The message is just "Give me a call back. I need to talk with you about your mother. I don't understand what's going on." He has knee surgery scheduled in the morning and I know she is very worried about it. I've left a voice mail reply. Then I phoned my sister-in-law. I haven't heard back from either of them yet.
In other news -
Nicky and Sean's wedding vow ceremony was beautiful, sweet, and funny. It was a huge collaboration of friends putting the event together in a very personal and creative way. Her family were able to be there and they are just as funny and sweet as she is. With the exception of the wedding party, the couple have cut out drinking and any other unhealthy habits and are actively trying to conceive their first child. I will look forward to future announcements/progress reports on that family project.
Wednesday, September 16, 2015
The End Of The World again... part 1
It started last Thursday with a text from my sister-in-law:
"Hi Jules. (my brother, my neice & her husband) and I are going to Itally Oct 16-26th. (My uncle) is having his knee operated on sometime in October. Your Mom does not know we are going so please don't tell her. She always gets sic when we go somewhere. With that said, can you come down and take you Mom to her doctor appointments and dialysis? I will need your help. Taking care of your Mom is wearing on me. I would appreciate it so much. "
"(My neice) said you can stay at her house... in Brookhaven. You'll like it."
First, if I stayed at my niece's house that would imply I would have to vacate it immediately upon their return that night, making the 5 to 6-hour drive back by myself, exhausted. This is the only accomodation being offered. Fortunately, I asked my friends B&G in Buckhead if I could stay at their place a couple of weeks in October and they said I was welcome to, so that problem was immediately solved.
Me: "Phone me ASAP so we can discuss details."
Sister-In-Law:
"At concert with (niece). Call 2 morrow. "
No phone call came the next day. I tried calling her with no answer. Then I got another text at 8:30 pm :
"Ok. (Uncle's) surgery for his knee is October 6th. Your Mom has to wear her sling 3 more weeks. Not sure if that means she has to stay in rehab or if she can go home. She is working on using her cane."
This means I would need to be in Georgia, taking care of my mother from October 6 through the end of the 26th at the earliest. I think I might as well stay through the end of the month and at least get to be around friends at Halloween, since now I will have no time to make Halloween plans for the house or other activities that I had wanted to plan (like a meet-the-neighbors pumpkin carving party).
Meanwhile, I have already turned down two possible temp jobs because I will be out of town. October is also the only time High Point NC is actually alive - during the autumn market week - so I can't look for any gigs during Market. I will not be able to free-lance without my computer, a fast WiFi connection, and all of my stuff (books, reference material, photo equipment, art supplies?) That also brings up the question of who is paying for this? No one expects to pay me anything for this. They just figure that because I have no full-time job, I have all the time in the world and no financial worries because MonsterMustDie is some sort of sugardaddy (He absolutely is not!). And yet, it is a task I can't say no to because there is absolutely no one who will be available or who wants to help my mother. I am not sure I can take care of her by myself.
... help ...
Wednesday, September 09, 2015
Labor Day Weekend
We were able to have dinner with Chaz and Sandra on Friday night when we got in and, of course, we enjoyed the Company of Mr. Bunny and C. while we stayed in their beautiful mid-century modern home. Saturday was spent with my mother, visiting her at the rehab she is having to live at while recovering from a broken arm. The visit went a lot better than I thought it would. She was thrilled to see us. We took her to and from her dialysis treatment that day as well, giving my brother and his wife a break so they could have some fun on saturday (probably attending a game or some other sports event). It was easy for the two of us to move her and get her to treatment on time but I can see how it would be difficult for just one small person like myself to do it. She was on her best behavior the entire day. The people working on her at the dialysis center were kind, smart, and patient. The rehab facility seemed to be a bit chaotic. She would love to get a shampoo and shower. The most she can do is a sponge bath every other day. There is no working shower or bath in her room. Showers are really out of the question now because she has the port in her chest again for dialysis because the broken arm is the same one that had the device implanted in it. The port must stay absolutely dry because of the high risk of infection.
Every other free moment was spent antique shopping by MonsterMustDie, who said he needed to shop every time we leave home to try to make the trip pay for itself.
Tuesday, September 01, 2015
Family Drama
My sister-in-law has done the necessary research to find a Westie rescue group who can take them. Hopefully, the dogs can go to a much better place together - a place with a yard and/or with humans who can take them for walks and keep them groomed.
Meanwhile, my mother has phoned asking me to come to Kennesaw, Georgia, obviously leaving everything and MonsterMustDie behind to take care of her dogs for the remainder of the month she is in rehab and beyond. A house far away from anything and anyone that now would be even more isolated than here in High Point where I at least have internet service and working computers and WiFi. I have been thinking of how I could help her in a realistic method. The best I can come up with is to come down to her place, spend a couple of days at a time cleaning while staying somewhere else like a friend's place an hour away, and taking the dogs back to North Carolina with me. We have a house cat and no fence and the dogs are not house broken, so they would have to stay on leads in the back yard during the day and I could crate them in kennels at night. That might work out for them for a while. Maybe I could eventually housebreak them. Maybe we could eventually get some sort of pen or fence for the dogs to hang out in. My mother actually wants me to live with her in a sort of Grey Gardens scenario. Not going to happen. There is no way to make it work.
I phoned my sister-in-law to tell her about this. As it turns out, the idea to have me live with my mother came from my sister-in-law. I said she probably should have have thought that one through before she spoke.
Later, she phoned me back to say my brother finally spoke with my mother. That is a huge step for him. He really does not speak to anyone in the family and, according to his wife, has nearly as hard a time dealing with our mother as I do. He told her I could not move down to live in her house and the dogs needed to be rehomed. "You're probably out of the Will now, but we'll take care of you."
I phoned my mother last night to talk with her, dreading the conversation I was expecting. Oddly enough, there was no mention of the dogs. She only talked about how awful the rehab facility was. Then she ended the conversation with "Take care of yourself." and hung up on me.
That went better than I thought it would.
UPDATE:
My uncle has now phoned my sister-in-law to say that the dogs must stay living with my mother. He is on board with her in the idea that I should be living alone with her in her flat to take care of the dogs indefinitely. This can not happen but both of them will not accept that. This will be an interesting Labor Day weekend coming up. Now, she is keeping the dogs and the younger family members are expected to take care of her and the dogs at home.
